If you have to help your child get in the bed the right way round, get out of the bed the right way round, or make sure they are covered with the blankets and duvets properly, don't give up hope for your child learning these things just yet. Dimitri learned all these things much later than would be usual. But we got there. Now the problem is prising the duvet out of his hands (and of course, Dimitri didn't sleep that much when younger, those days, going to sleep was the problem, not getting up)
He does need help getting to the bathroom and getting dressed, and he is always a bit stiffer and slower in the mornings (do I need to say so am I?). This takes quite some persuasion. Sometimes, after the above, pre-getting-up routine, Dimitri will lie face down on the mattress and grip the sides of the mattress. Trying to get him off would be like trying to prise a limpet off a rock - so I go drink some more coffee... Usually he gets up at this point, we have to be quick to get him to go to the bathroom before he rushes into the living room otherwise it's very hard to persuade him to use the toilet.
This morning Dimitri was sleeping lying on his back with his arms thrown up over his head. From the tips of his fingers to the elbows his hands felt like ice. Every night I try and tuck his hands in the bed, even in his sleep his will pull his arms out again in a slightly irritated manner. It doesn't seem to bother Dimitri that his hands are freezing. It bothers me. I'll be attempting to tuck his hands under the covers tonight as usual.
The first day Dimitri wore the above new jumper pullover, he kept point too his chest and looking up at me with a slight smile. "yes, new jumper" (pullover, I meant to write pullover*) I would say. I don't know if he is trying to say he likes the pullover, doesn't like the pullover, is observing that it's new or whatever. I like to think he is saying he likes it. Well I did chose it after all. What are the young folk wearing these days? I need lessons in "what's cool for kids to wear".
| cat with mud |
| wet pissed off cat |
| still wet cat |
| dry but still pissed off cat |
| dry sleepy cat |
So we heard the cat fighting outside, 30 seconds later it runs in covered in mud. It needs lessons in self defense. I washed it. It wasn't happy.
*pullover in Greek is..... pullover, only spelt** funny . You would think as it's the same in both English and Greek there would be no problem, but I'm stuck with using the word jumper out of habit.
** spelt or spelled? Spell check doesn't like spelt.
7 comments:
Such a sweet and endearing post!
And it's "spelled" (I'm an closet editor!)
It's good to hear from you -- I've missed your blog posts --
And as an editor, I note the typo of "an closet" when it should read "a closet!"
Oy!
Oh I'm so jealous :) Dimitri gets into bed on his own, stays in bed and you actually have to semi-fight him to wake him up. And I haven't even mentioned the whole toilet issue. How about you write a manual and I pay you good money for it.
We also adopted the word pullover in Hungarian, but pronounce it and spell it goofy. That's what usually happens to words when other languages get a hold of them :)
Elizabeth - at least yours was just a typo, my spelling and grammar are appalling :) I could use an editor by the way.
erika - Ah, well, not always so simple, things changed very slowly. After maybe the age of 5 or 6, when he was doing more hours in a day program things slowly got better and he could go back to sleep when he woke (if I'm next to him that is), although only the last 2 yrs or so has he been able to sleep right through without waking. Right now it's about 50/50 that he will wake up around 2am, I crash out next to him and he goes back to sleep okay!! It kind of funny that he doesn't want to get out of bed:)
The toilet is difficult, we take him every few hours but he needs a lot of - um... persuasion(?) - to go.
Transliterations look so funny:)But I can't break the habit of saying jumper (English people can be so awkward)
Struggling to get a child to and out of bed is very familiar here - our youngest is still in the Teen-form of those behaviors. The thought that some children actually advance to teen behaviors has occurred to me.
For his cold hands....set me to thinking a sequence along the lines of - things not usually tended to for children with autism and AS. At his next medical checkup, could you ask for an oximeter reading in his fingers?
I didn't know 'jumper' meant pullover even though I've read the word many times.
Barbara
TherExtras - slow reply, sorry. Dimitri hasn't had an oximeter test (our doctors don't have anything so "newfangled"), but I have talked about hands and feet being cold.
One year it was very bad (also "marble" effect on legs), 3 paeds said Raynauds syndrome, which just describes what happens, not the cause. But one sent Dimitri for a bunch of tests, and to a rheumatologist, she wanted to make sure there was no chance of drug induced lupus (as Dimitri takes AED's)
Many many tests, the only one that came back positive was a throat culture for strep!?! Every year this time of year, Dimitri gets more pronounced cold hands and feet (and blotchy legs), I'm always suspicious for strep throat...
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